Spring in Review: 14th Annual Rare Disease Research Conference

The Boler-Parseghian Center for Rare and Neglected Diseases hosted the 14th Annual Conference for Advancing Rare Disease Research, Therapy, & Patient Advocacy on March 3-4, 2023. The event featured plenary sessions by top researchers from around the country as well as engaging panels with researchers and patient families. Students in the Minor in Science and Patient Advocacy were invited to attend the event as part of their studies, too. Annika Knuth, a neuroscience major and science and patient advocacy minor from the Class of 2023, was honored with the Megan K. Crowley Patient Advocacy Award and Rachel Whitehead, a neuroscience major from the Class of 2023, received the John M. and Mary Jo Boler Rare Disease Research Award. Congratulations, Rachel and Annika! Plenary speakers at the event were Catherine Brownstein, MPH, Ph.D. (Boston Children's Hospital); Andrew Lieberman, MD, Ph.D. (University of Michigan); Jerry Vockley, MD, Ph.D., FACMG (University of Pittsburgh); and Rebecca Wingert, Ph.D. (University of Notre Dame). We invite you to view a highlight reel from the conference here.

Originally published by Patient Advocacy Staff at spaminor.nd.edu on May 24, 2023.